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Sue is 55 and has SMA III. She makes her home in
southeastern Wisconsin with her husband of 34 years. After retiring
from her work as a rehabilitation counselor, Sue has concerned
herself with her extended family, the newsletter and volunteer work.
She enjoys reading, homemaking, cats and sun! |
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The
SMA Experience as Seen Through a Brace of Prozac
by
Sue Wilcox
I cannot walk, I cannot dance
I can’t put on my own damned pants
I cannot drive, can’t lift a book
No longer can I even cook
My arms are gone, my hands too weak
I cannot lift a glass this week
And now I find one more to add
I cannot change my menstrual pad
Do I complain? Do I boo-hoo?
Hell no, it’s just one more thing I cannot do
I’m getting good at giving up
Activities that are too tough
For flaccid muscles to complete
While sitting on my flaccid seat
I’ll soon be just a big fat blob
Incapable of any job
But still there’s hope, if I get my wish
I could succeed as a jellyfish
I’d float the seas, drift here and there
Who’d care if I can’t comb my hair
The water’s warm, I’d see the sights
Not fight to scratch mosquito bites
No worries filling up my head
On how to find a decent bed
No chairs, no cushions, no pressure sores
No inaccessible houses, stores
A warm, free ride in oceans deep
A job I know that I can keep
To get my dream, wish on a star
Just go outside, it’s not too far
Unlock the door and roll on through —
Oh, shoot! Another thing I cannot do!
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